• Fri. Jul 1st, 2022

Chronic urticaria support group: where to find

  • Peer support groups can help you manage the mental and physical challenges of living with chronic urticaria.
  • You can find help through social media, online discussion forums, and local in-person groups.
  • Urticaria Day (UDAY) offers more opportunities to get involved in the community of people with chronic urticaria.

Idiopathic urticaria involves red, itchy flares that appear on your skin for no known reason. The disease becomes chronic when the hives last more than 6 weeks and the flare-ups recur.

through online and in-person support networks.

While dealing with chronic urticaria can be an isolating experience, you are not alone with this condition.

Chronic urticaria affects about 2% of people in the United States, according to the World Allergy Organization. The Asthma and Allergy Foundation of America estimates that approximately 1.6 million people in the United States have CIU.

This means that there is a large community of people who share some of the challenges of living with hives, which can affect emotional well-being. A 2019 review of 25 studies found that nearly one in three people with chronic urticaria also suffered from a mental health problem.

Although more research is needed to find out whether UIC causes certain mental health problems, the review found a link between hives, depression, and anxiety.

Reaching out to a peer support group can help you find ways to cope with the challenges of living with chronic hives. Other people living with UIC can directly understand the things you are going through, offer you helpful advice, and remind you that you are not alone.

While there are many support groups for people with UIC, no two groups are exactly the same. It is important to find one that makes you feel empowered, supported and informed.

Do some research on the band before you jump in. It can be helpful to read the group rules, what is expected of you and others, and how your privacy is protected. As you become more involved in a group, think about whether the group meets your needs as a person living with IDS.

Here are some options for support groups for chronic hives:

Online discussion forums

Discussion forums allow members to post a question or topic and collect responses from others. A discussion board makes it easy to scan posts and participate in the topics that matter most to you.

Here are three discussion forums for people with UIC:

  • Urticaria Day Discussion Forum. The Urticaria Day website, which honors a chronic urticaria awareness day, hosts a forum with topics related to urticaria.
  • Daily Strength Hive Support Group. Daily Strength has an online support group for people to share their experience with chronic urticaria and autoimmune urticaria.
  • Inspire. Inspire is a large community of people dedicated to mental health. On its main portal, you can search for user-submitted articles that deal with chronic urticaria.

Social media groups

Social media sites like Facebook make it easy for people with CIU to create and join support groups. These groups can be public, private or have specific geographic boundaries.

Here are some Facebook groups for those with CIU:

Local groups in person

Many communities are home to in-person support groups for people with chronic illnesses. Your doctor or other members of your healthcare team may be able to recommend a support group for people with chronic urticaria in your area.

Mental Health America also offers ways to find support groups that you can attend in person, such as through its affiliate program. If the group is unable to meet in person, they can connect virtually.

Urticaria Day (also known as UDAY) is celebrated on October 1 of each year. The global outreach initiative includes online and in-person events. It offers people with chronic urticaria the opportunity to connect with other people with the disease.

You can get involved by organizing an event or promoting the day via the #uday or #urticariaday social media hashtags. As awareness of hives increases, you may see new peer support groups and other communities emerging.

If you have chronic urticaria, you are not alone. Connecting with other people with the condition can help you learn ways to identify your triggers, ease symptoms, and deal with the emotional aspects of hives.

Places where you can find help include:

  • online discussion forums
  • social media groups
  • in-person communities in your area

You can also find other people living with the disease through Urticaria Day events.